Chris Heaton-Harris supported people affected by a terminal disease at the Parliamentary launch of a charity’s innovative awareness campaign.
The Conservative parliamentary candidate for Daventry attended the Progressive Supranuclear Palsy Association’s (PSPA’s) launch last month and met Peter Daniels, director of information and support at the Northants-based charity.
PSP is a progressive neurological condition which over time cause problems with swallowing, slurred speech, recurrent falls, irritability and apathy, slowness of response and severe difficulties walking.
The average life expectancy is around seven years from the onset of symptoms.
PSPA are also launching its new range of ‘Ed’s Laces’, a shoe lace in the PSPA’s corporate colour, but with one end cut to enable the lace to fray. The frayed end depicts the progressive nature of the disease.
PSPA’s Director of Development, Cameron Wood, said: “We were delighted Chris Heaton-Harris attended our parliamentary reception to meet people living with the disease, their families and our supporters.
“Our innovative Ed’s Lace campaign will raise much-needed awareness of PSP while generating funds to support our charity’s work.
“It also aims to educate health and social care professionals as we call for more timely diagnosis of the condition, leading to better coordinated care.”
Ed’s Lace will be the focus for this year’s PSP Awareness Week from 18-26 April.
PSPA will be selling Ed’s Laces around the UK and encouraging people to wear a lace in their running shoes, tied around their wrist, in their hair, on their belt - anywhere they can think of to show their support.