Woodford Halse mum backs new group for disabled children

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A MUM has told other parents not to be afraid to ask for help following the launch of a new campaign to help disabled children.

Victoria Orritt, who lives in Woodford Halse, has three children, two of whom – Alex, aged five, and Daniel, aged four – have a little known developmental condition called Smith Lemli Opitz, which affects many parts of the body.

A county wide campaign has been set up by Aiming High for Disabled Children to make sure that all families with disabled children, along with the health and education professionals with whom they come in to contact, can get the right level of support.

It is estimated there are more than 3,000 disabled children and young people living in the county but many of them are failing to access the services and support they need because they are not sure where to start.

Mrs Orritt said it was at a time when she was at the SureStart Centre in the village that she was able to get the help she needed.

She said: “I was going through a really rough time with both Alex and Daniel and trying to get them diagnosed.

“I could tell there was something wrong with both of them but the doctor’s kept telling me there was not a problem. When I was at the centre, there was a woman from Aiming High there and she helped out.

“Within a few weeks of meeting this lady, I had it diagnosed that both Alex and Daniel had Smith Lemli Opitz syndrome.”

The scheme has managed to help out her family and she believes others should ask for help if they are struggling.

Mrs Orritt said: “Aiming High provided us with a student nurse who was able to help look after both Alex and Daniel while I could help out my daughter with homework.

“I know some parents are worried that if they say they need help, they are worried that their children might be taken away from them and social services will be on the phone.

“Don’t be afraid to ask for help.

“I wish that I had known about Aiming High a lot sooner.”

Aiming High for Disabled Children Northamptonshire is a partnership between Northamptonshire County Council and NHS Northamptonshire that has been transforming services for families with disabled children in the county since 2008.

To find out more information on the campaign visit www.aiminghighnorthants.co.uk.