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Wheelchair will Daventry girl’s change life

Pictured, from the left.Brian Bell,(Provincial Grand Stuart ),Anne Moule, Charlie Moule age nine,and Charles Reeve ( Worshipful Master)   Northants and Hunts,Mark Masonic Province masons, handing over a wheelchair.
Mhde-22-02-14 wheelchair NNL-140224-091253001

Pictured, from the left.Brian Bell,(Provincial Grand Stuart ),Anne Moule, Charlie Moule age nine,and Charles Reeve ( Worshipful Master) Northants and Hunts,Mark Masonic Province masons, handing over a wheelchair. Mhde-22-02-14 wheelchair NNL-140224-091253001

A Daventry mum says a wheelchair donated to her disabled daughter will have a huge impact on the quality of her life.

Charlie Moule, nine, suffers with achondroplasia, a form of dwarfism which means that she has the body of a three-and-a-half year old.

The donation, from the Daventry Masons, will improve the life of Charlie who struggles to get around and suffers with water on the brain.

Anne Moule, Charlie’s mother, said: “This will mean the absolute world to all of us as a family.

“She is constantly in pain and while she can walk, the fact that she is so small means that she can only take little tiny steps.

“Having the wheelchair will mean that we can get around a lot more as a family.

“It has been designed so that it will last her for the rest of her life which is fantastic for all of us. It will mean she has got more independence and will be very useful in her later life.”

Charlie has also been delighted with the wheelchair which she has spent time working on.

Mrs Moule said: “I think the thing that really pleased Charlie was that when the wheelchair was delivered, there was a teddy bear sitting in it.

“She loves teddies and she gets one every time she goes into hospital.

“She has taken some pipe cleaners and put them around the wheels to make it look a bit more funky. She’s really happy with it. For instance, she went on a school trip to Daventry Library which is not that far but she would normally really struggle. Now she’ll be able to go on trips and enjoy herself.”

The nine-year-old, who attends the Danetre and Southbrook Learning Village, has already been through a lot, having had to endure 29 operations in her short life.

Mrs Moule added: “She is a remarkable little girl, she does things that make you think ‘how did she manage to do that?’

“She is in constant pain all of the time due to her injuries. She has bow legs, pins and plates in her body and has really bad headaches.

“She has always been very determined. She gets frustrated sometimes when she can’t do things but she will never give up.”

The wheelchair was donated by the Beneventa Lodge of Master Masons in Daventry and handed over at the end of last month by provincial grand steward Brian Bell and worshipful master Charles Reeve.

Mr Bell said: “We were really happy to have helped out Charlie and her family with this donation. We know it will make a massive difference.”

Achonodroplasia is the most common form of restricted growth within the RGA. People with the condition have an average sized trunk and short arms and legs.

With achondroplasia, the gene causes the receptor to be overly active, which interferes with ossification and leads to the disturbances in bone growth seen with this disorder.

It is estimated to occur in approximately 1 in every 26,000 births.

Further details can be found on achondroplasia and a range of drawfism conditions by visiting www.restrictedgrowth.co.uk.

 

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